Who is your chair?
Our chair is Richard Astle, the owner and director of the recruitment firm Athene Interims.
How many trustees are there?
We have 18 trustees; seven of these have either spina bifida or hydrocephalus. None of our trustees is paid.
How often does the board meet?
It usually meets four or five times each year.
Will the board expand?
Our constitution allows us to have 20 trustees, so we may well do so.
How do you recruit trustees?
We advertise within our membership. We also work with external network organisations.
What issues are the board talking about at the moment?
We are setting the charity's budget for the next three years. Trustees are also talking about the charity's new campaign, called Go Folic, which will urge pregnant women to take folic acid in order to prevent their babies from developing spina bifida.
We have produced a factsheet in conjunction with Kellogg's and will spread the word via Twitter and Facebook.
When was your last governance review and what did it conclude?
We review our governance on an ongoing basis. At the moment, we are looking to develop a trustee skills matrix.