New guidelines will raise awareness among parents and hospital staff of child congenital heart conditions. The guidelines, drawn up by medical professionals and a campaigning charity, come in the wake of the Bristol Royal Infirmary scandal.
The Children's Heart Federation, a charity founded by parents to help children with heart conditions get better care, has collaborated with the British Paediatric Cardiac Association. Together, they have worked on the guidelines, which will be fed into a Department of Health review into paediatric and congenital cardiac services. The guidelines will be published later this year.
The charity produces educational materials for teachers, social workers and service providers, and runs a national helpline for families and professionals involved with children who have heart conditions.
The number for the helpline is 0808 808 5000. The Children's Heart Federation's web site is www.childrens-heart-fed.org.uk.