COMMUNICATIONS NEWS: Parkinson's group prepares pack for younger sufferers

Young people diagnosed with Parkinson's disease are to benefit from an information pack containing advice about the condition and its treatment, and featuring real-life stories.

The Parkinson's Disease Society has launched the One in Twenty pack, which was written mainly by young sufferers and is targeted at 20 to 40 year olds.

"A lot of the younger people who contributed to the pack were also involved in the consultations which led to its creation," said Julia Morris, head of community services development at the society. "We wanted to produce something geared to young people and the issues they face when diagnosed with Parkinson's."

Of the 10,000 people diagnosed with the condition each year in the UK, one in 20 will be aged under 40, according to the charity. A survey released last week revealed that only one in four people are aware that Parkinson's can affect younger people.

More than 5,000 copies of the A3 ring-binder pack have been distributed to nurses specialising in the condition, as well to the families and carers of sufferers. The society has also created a web site version of the pack.

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