Focus: Finance and Governance - The Numbers - Rett Syndrome Association

Patrick McCurry

The association supports people with Rett Syndrome, a neurological disorder, and their families and carers.

Total income: £298,000 for the year ending 31 March 2005, up from £283,000 in 2004.

Highest salary: No employee earned more than £40,000.

Fundraising costs: The charity raised £176,000 in donations and fundraising income, and its fundraising costs were £23,000. This gave it a fundraising ratio of 13p in the pound, down from the previous year's ratio of 15 per cent.

How performance is communicated: The annual report gives a clear overview of the charity's work. It usefully links performance during the year with the charity's overall strategic aims and includes targets for the following year.

The report is available at the charity's website, www.rettsyndrome.org.uk, as is a three-year action plan covering the period from 2003 to 2006. This plan sets out the progress the charity expects to make each year towards meeting identified aims, with the progress made reviewed on an annual basis.

The charity says: "The Health Foundation grant of £120,000 over four years continued to make a major contribution to funding our core costs.

"During the year, we were extremely pleased to be selected as a Jeans for Genes guest charity for a third year.

"Despite the completion of the Big Lottery Fund grant and a difficult funding year, we have still been able to continue funding research. We have also continued the invaluable work of the family support workers and improved our information and web services.

"Unfortunately, funding from the Health Foundation and Jeans for Genes is due to end some time this year. This will mean a substantial loss of general and research income."

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