FUNDRAISING NEWS: Sense wins grant for research into Usher syndrome

Sense has secured a grant of nearly half a million pounds from the Community Fund, almost three times bigger than other cash sums from the fund.

The deaf-blind charity was awarded £467,141 for a research study to improve the lives of people with the little-known Usher syndrome, a genetic condition whereby a person is born deaf and gradually loses their sight.

Funding will pay for five posts over three years for the study, which involves the Institute of Child Health, Moorfields Eye Hospital, the University Hospital in Leeds and 200 families affected by Usher syndrome.

The award is the culmination of an 18-year study of Usher syndrome by Mary Guest. Since joining Sense in 1984, Guest has established a network of contacts that made the bid possible.

"The fund is a way of getting critical studies done for organisations like us that aren't a medical charity but who care for people with a medical condition,

said Guest.

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