Cystic fibrosis sufferers are dying at a young age because NHS money is failing to get through to the front line, according to charity research published this week.
The Cystic Fibrosis Trust says that the average life expectancy of patients is 31, but many are dying in their teens and early 20s because of differences in the length and quality of care.
The organisation claims that none of the 38 specialist centres receive sufficient funds, and that only nine of the centres are able to employ even half of the staff they need, with one saying it only had funding for 8 per cent of the required staff.
"The welcome increase in NHS funding over recent years is simply not getting to the front line of cystic fibrosis carers," said trust chief executive Rosie Barnes.
Barnes has written to supporters saying the charity has been lobbying Labour since it came to power in 1997, but "we have not been able to persuade them to make the changes needed".