Third Sector Awards 2018: Charity of the Year - the Brain Tumour Charity

Third Sector Promotion Markel

This prestigious award goes to the charity or voluntary sector organisation that has had a truly exceptional year and whose recent achievements have attracted the admiration of the sector

What is the charity’s aim?

Brain tumours reduce life expectancy by 20 years on average and are the biggest cancer killer of children and young adults. Despite this, less than 2 per cent of cancer research funding in the UK is spent on brain tumours every year. The Brain Tumour Charity aims to fund excellent research, reduce diagnosis times and provide practical support and information to people with brain tumours, their families and friends.

What has it achieved in the past year?

Last year the Brain Tumour Charity made outstanding progress through its research, awareness and support programmes and implemented innovative new projects to drive change. The charity smashed its target of committing £20m to research between 2015 and 2020 two years early, funding 18 more projects. In June 2017, it opened the Everest Centre for research into low-grade childhood brain tumours, which can severely affect quality of life.

What else has it done?

The Brain Tumour Charity has developed BRIAN (Brain TumouR Information and Analysis Network), a pioneering online databank enabling patients to connect and make better-informed decisions about the disease. By sharing data, users are able to accelerate research to find better treatments and a cure. The charity has also opened applications to establish a Glioma Adaptive Clinical Trial to build brain tumour trial infrastructure.

The charity is also developing the Brain Tumour Fund to invest in promising treatments, by means of investing £10m in the first venture capital fund in the world to focus exclusively on finding new treatments for the disease. It continues to promote the national awareness campaign HeadSmart to push early and accurate diagnosis. Parental awareness of the scheme stands at 28 per cent, beating the target of 25 per cent.



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